When bad medical news hits, the blow can be devastating.
Shock is almost always the first thing people feel, followed by anger, fear and often a profound sense of sadness.
At times like these it came be extremely difficult to collect your thoughts and decide what to do next. Your head is likely to flood with questions that arrive at various moments – in the middle of the night, in the shower, in between sips of coffee.
An experience like this is made all the more difficult if you are someone whom others rely on, which is why I’m writing about this topic here.
Just the other day I met a woman who received a game-changing medical diagnosis. Amongst the worries that were obviously overwhelming to her, one in particular stood out and took the form of a question: Will this illness prevent me from taking care of my aging parents as I’ve been doing for the past several years?
I encouraged her to ask it at her upcoming doctor’s appointment. What better way to cut to the chase and get to what matters most to her and to her mental well-being? I also offered her the advice below.
1. Write down every question you can think of starting with the ones that scare you the most
You might be surprised by how much better you feel after doing this. That’s because there’s something very powerful about putting our fears in writing – as if the thought aren’t free to swim around in our heads anymore because we’ve expelled them somehow. This helps us to regain a much-needed sense of control.
Obviously, this exercise also helps you to focus on the questions that matter most to you which is critically important when appointments are brief (and let’s face it, they often are).
2. Try to organize your questions into things you need to know by the end of today, by the end of this week, by the end of this month
Along the same lines as #1 above, it’s very easy to get lost in conversation that is inconsequential when you’re pressed for time. Instead, understand that every minute counts. Just like the “Sell by” date on the milk container in your fridge, put a “Need to Know By” date next to each of the questions on your list so that you can stay focused during the appointment and leave with the information that’s most important.
3. Invite someone you know and trust to go with you to the appointment – preferably someone who is a good listener and note-taker
Depending upon who’s in your social circle (and how forthcoming you’ve been with friends/family about your bad medical news), you may have more than one person offer to go with you to the next appointment. Choose wisely here. This is not the time to feel obligated to take your sister because she was your Maid of Honor 20 years ago. It’s also not the time to be a hero and go alone – got me?
The purpose of taking someone with you is a strategic one: You want an extra set of eyes and ears to help you recall what was said later on. Plenty of research shows that people hear only a small fraction of what’s said in a doctor’s office. Especially when anxiety is part of the picture.
4. Regardless of time constraints, ask your questions
Remember how I said before that it’s easy to get stuck in conversation that’s inconsequential to you when you’re pressed for time? Yeah?
Well it’s even easier to lose your nerve or feel unworthy of answers when the provider seems big and distinguished and important … or when he/she seems incredibly rushed.
Whatever happens, don’t let the hustle and bustle stop you from getting the answers you absolutely need. If you run out of time, schedule another visit as soon as possible. You are worthy and you do deserve the answers.
5. Give yourself time to digest what you’ve heard so you can make good decisions
When you leave the doctor’s office you will likely have a mix of emotions not unlike the ones you felt going in. But, you should have a clearer understanding of the most important things. Inevitably there will be decisions to make and next steps to take, so do yourself a favor and take some time to digest what you’ve heard. Whatever this “digestion” looks like for you, I would encourage you to regroup with your co-listener/note-taker to compare what you heard the doctor say.
Above all, be gentle with yourself. A diagnosis of a serious illness is one of the most stressful life experiences a person can have. If at all possible, try to find others who have been where you are and accept their support.
Maria Basso Lipani is a social worker who blogs at Geriatric Care Management.
Submit a guest post and be heard on social media’s leading physician voice.