It’s been weeks since the news broke of UniQure’s trial successfully slowing the progression of HD, and I still find myself breaking down in tears. I have been going about my life, doing the groceries, going to the gym, cleaning the house, and the tears keep coming unexpectedly. I am happy about the news, but that is not how it feels in my body. I have come to realize …
Autism was never meant to be diagnosed in 15 minutes.
The original vision, born in war-torn Vienna and postwar Baltimore, called for deep observation, multidisciplinary insight, and time. But somewhere between the ideal and the insurance code, we lost the standard.
Today, families navigate a system built for speed, not truth. And children pay the price.
The ideal vs. reality
In theory, pediatricians perform routine developmental surveillance. Screenings like the M-CHAT happen at 18 …
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Neurologist Ray Dorsey discusses the article “Expanding the Parkinson’s universe of care for patients, caregivers, clinicians, and communities.” In this episode, Ray reimagines Parkinson’s care through a cosmic analogy, with patients as …
John, a man in his early sixties, waited nine months to see me about memory problems. When he finally arrived, I had twenty minutes. Eighteen went to detective work, extracting fragments of history from conflicting accounts, piecing together months of decline from unreliable memories, and completing a paper-based subjective memory test. What should have been a full consultation of patient-focused care, was reduced to only a few hurried minutes at …
The idea that medicine is a “calling” has been entwined deeply within our profession. From white coat ceremonies to recruitment posters featuring smiling doctors holding stethoscopes, we are told that to enter medicine is to answer a higher purpose. This framing is powerful. It inspires loyalty, fuels commitment, and builds identity. That is how the brainwashing begins as it also hides a dangerous truth: Labeling medicine as a calling has …
An excerpt from Held Together: A Shared Memoir of Motherhood, Medicine, and Imperfect Love.
Scott and I held hands as the last few minutes of waiting expanded to rival the anticipation of the days that had already passed. Two weeks ago at this same medical center, our perinatologist had performed a chorionic villus sampling, the procedure to collect the fragment of placenta that would determine our course. I had been …
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Neurologist Scott Tzorfas discusses his article “The crushing bureaucracy that’s driving independent physicians to extinction.” Scott shares his firsthand experience as a neurologist in private practice for three decades, where endless pre-authorizations, …
Caring for someone with Alzheimer’s is not just exhausting; it is emotionally disorienting. You lose pieces of someone you love, slowly, in a thousand small ways. And while books, doctors, and websites talk about the medical side of Alzheimer’s, there are things they do not prepare you for like the guilt, the grief, the unexpected laughter, and how much it can break your heart. If you are in this role …
I am the mother of a 37-year-old son diagnosed with autism and Crohn’s disease. He also has serious intellectual and developmental disabilities (IDD), requiring round-the-clock care and support. I also have a medical history of PCOS (polycystic ovary syndrome) and took fertility medication to conceive him. For years, I have watched the autism diagnosis rate climb while public discourse remained fixated on single causes or stigmatizing narratives. But we are …
An excerpt from Whispers of the Mind: A Neurologist’s Memoir.
I have never been one to seek out medical care, as I have been fortunate to have been in excellent health most of my life. So, when I presented to my GYN for my yearly follow-up, I brought up my first health complaint in the twenty years I had been seeing her, abnormal bleeding. We were colleagues and she knew …
An excerpt from The Parkinson’s Plan: A New Path to Prevention and Treatment.
The Parkinson’s universe
In 2002, we proposed a simple Parkinson’s care model. The patient is the sun, and all multidisciplinary care should orbit around the patient, not the doctors. The sun is vital but only part of the universe. It is time to expand our Parkinson’s care model.
The caregivers
If we …
I have spent decades learning about how bodies and brains work, but nothing has taught me more about complexity than raising my autistic son. He is nine, curious, brilliant, and completely captivated by chemistry. He can explain the structure of an atom with more clarity than most high school students.
But when we step into the real world (classrooms, stores, even family gatherings), sometimes his brain does not get to shine. …
There is evidence that coconut oil may be a potent weapon in the battle against Alzheimer’s disease and other types of dementia and, perhaps, psychological problems such as depression.
Not just any coconut oil will do the trick, though. Virgin coconut oil (VCO) is extracted from fresh coconut meat without the use of high heat or chemicals, preserving its natural nutrients, flavor, and aroma. VCO is typically pressed from fresh, moist …
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People say it all the time: “Well, it’s not brain surgery.” It’s meant as a joke, a way to say something isn’t that hard. But for me and my colleagues, it is brain surgery. Every single day. And it’s hard in ways that go far beyond the technical.
Every August, we mark Neurosurgery Awareness Month. It is a time to shed light on one of the most complex, demanding, and profoundly …
As a board-certified neurologist in independent practice for three decades, I’ve watched the soul of medicine slowly erode, not due to a lack of compassion, skill, or science, but from a suffocating bureaucracy that has infiltrated every corner of patient care. Private practice doctors across America are being regulated, pre-certified, audited, and administratively strangled out of existence.
Each week in my office, my staff and I spend countless hours fighting with …
I remember a patient in her early sixties who came to our clinic with subtle memory problems. She lived alone in a rural county, relied on Medicaid, and had been passed between social services and different primary care providers for more than a year. No one had ordered imaging, and there were no neurologists nearby. By the time Alzheimer’s disease was suspected, her window for early intervention had already closed.
Medicare …
This is a famous teaching in the Talmud, which in the Jewish faith is the commentary on the Hebrew Bible. Why would the holy book of the Jews make such a proclamation? It turns out this is about arrogance. It is about humility. The “best doctors” may also be the most prideful. Their arrogance may prevent them from realizing they need help. If they do realize it, their pridefulness may …
When people think of Parkinson’s disease (PD), they often picture Michael J. Fox or Muhammad Ali, iconic figures who bravely shared their diagnoses. But the real face of Parkinson’s is much more diverse than what we see in the media, and the research that shapes our understanding of the disease has not caught up.
Despite affecting people of all racial and ethnic backgrounds, …
Multiple sclerosis (MS) is an autoimmune-mediated neurodegenerative disease that affects approximately 2.8 million people worldwide, and its incidence has risen over the past decade. As health and wellness professionals who have cared for people living with MS, we have both witnessed the ever-evolving journey and the roller coaster of emotions, psychosocial impact, symptoms, and health challenges that people living with MS face. The muscle weakness that makes walking more …
I had a stroke at the age of five.
It was an ischemic event, rare in children, difficult to diagnose, and often missed in early stages. I experienced a sudden loss of motor function that led to a long period of rehabilitation. I spent months relearning how to walk, balance, and perform basic movements, guided by physical therapists and the steady structure of routine. I was too young to understand what …
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