The importance of listening in health care: a mother’s journey advocating for children with chronic Lyme disease

My husband, a physician, and I have four wonderful children – a son and three daughters. I look back over the past decade and wonder, “Why?” Why did my daughters contract Lyme disease and not my son or husband? Why was it so difficult to establish a diagnosis? Why are doctors specializing in treating patients with Lyme disease considered pariahs, while conventional doctors may not consider the diagnosis and often …

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