Healthy or not, everybody has his or her share of frustrations in life. The chronically ill don’t have a corner on that market! This piece focuses on frustrations that are unique to those with ongoing health issues. I’ve experienced all of them as a result of being chronically ill with a debilitating illness that settled in after I contracted what appeared to be an acute viral infection in 2001. Here are ...

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After sixteen years of chronic illness and even after writing a book titled How to Be Sick, I still can feel sick of being sick. (When I use the word “sick,” I’m including chronic pain.) If you’re as intimately familiar as I am with sick of being sick, you know it how unpleasant it feels. Here are ten strategies to help you through this difficult emotional time. 1. Start by acknowledging how ...

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Pacing refers to spacing out your activities during the day so that you’re able to stay within the limits of what your body can handle without exacerbating your symptoms. Another way to think of it is that pacing is a way to keep you inside your “energy envelope” -- the envelope that contains your energy stores for any given day. First, an admission: Even though pacing may be the single best ...

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Obviously, chronic illness doesn’t affect everyone the same way. That said, I’ve heard from people all over the world with every imaginable chronic illness (which includes chronic pain), and our day-to-day lives are strikingly similar. And so, I thought I’d describe a typical “day in the life,” using my own experience from a few months ago as an example. My hope in writing this piece is for those of us ...

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After more than fifteen years of being mostly housebound by chronic illness (which includes chronic pain), here are a few of the dilemmas I’ve faced over and over. I’m confident that I’m not alone in my “should I/shouldn’t I?” world. Do I accept an invitation from a friend to get together or do I refuse it? If I refuse the invitation, depending on who issued it, it may be the last one ...

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This piece is based on personal experience and on the thousands of emails I’ve received from those who live day-to-day with chronic illness (which includes chronic pain). 1. Email. I know the joy of hearing the actual voice of a loved one. That said, email is the principal way I communicate with people. It’s hard for me to talk on the phone. It saps my energy quickly, partly because of the need for ...

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Many of us who suffer from chronic pain and illness are on medications that carry side effects that, in some cases, can be as difficult to cope with as our initial health problems. I’ve recently started a medication that I’m scheduled to be on for five years. I’m taking it because it significantly reduces the risk of a recurrence of my recent bout with breast cancer. And so, yes, I’m taking ...

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Here’s the most distressing piece of unsolicited advice I’ve received to date. It showed up in my Inbox two days after I’d completed a course of radiation for breast cancer. The email was in response to an article I’d written about this new, unexpected turn my life had taken; the article included the fact that, at the time, I was in the middle of a course of radiation treatment. Here’s ...

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An excerpt from How to Live Well with Chronic Pain and Illness: A Mindful Guide. Copyright 2015 by Toni Bernhard. Excerpted with permission from Wisdom Publications. "Freedom is instantaneous the moment we accept the way things are." - Karen Maezen Miller A well-known Buddhist story known as the Mustard Seed helped me ...

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An excerpt from How to Live Well with Chronic Pain and Illness: A Mindful Guide. Copyright 2015 by Toni Bernhard. Excerpted with permission from Wisdom Publications. "Remembrance of things past is not necessarily the remembrance of things as they were." - Marcel Proust For the most part, I’ve adjusted to my new ...

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