The cost of medical service provision in the United States is one of the most palpable strains on the health care system, but we must not forget that cost is the sibling of quality and access — without considering the three as such, we will undoubtedly fail to navigate our country’s health care quandary. Low-quality care inevitably results in the need for more care in the form of readmissions, while lack of access to primary care leads to increases in the utilization of expensive, emergency services. Of particular concern in our country, a growing contributor to cost, and driven by low-quality care and even less access to that care, is the systematic exclusion of undocumented patients. This was made very clear to me through the example of a single suffering patient, Mr. Gomez (all patient names changed to protect patient privacy).
Mr. Gomez was an acquaintance of my family who we would sometimes informally compensate to help with various household construction projects or logistical tasks at my father’s small business. He was originally from El Salvador, and like many others, made the arduous journey through Central America and Mexico to escape the immense gang violence and poverty that afflicts his country. I wasn’t entirely sure, but I could venture a guess from conversations I had with him that Mr. Gomez was undocumented, not uncommon in Southern California; nonetheless, this made life very challenging for him. Among the several daily worries he had, such as driving without a license (although I suppose he now has one, thanks to Assembly Bill 60), he also had no regular access to basic medical care. While in theory he could have gone to one of the free clinics around Los Angeles for a basic workup, his immense anxiety regarding his immigration status and how that would impact his care led Mr. Gomez to avoid the healthcare system altogether. He is certainly not alone in this fear, and resultant avoidance of contact with the medical system.
And so, by the time he eventually showed up to a large county hospital in Los Angeles County, it was both a surprise and yet not a surprise when a large vesicoenteric fistula (a connection between the bladder and bowel causing a mixture of urine and stool) had formed within his body, leaving him with severe systemic infection. If Mr. Gomez had an established primary care provider, he would likely have gone in months earlier when he first had diarrhea, bloating, and abdominal cramps, the classic symptoms of diverticulosis (a condition in which the colon develops outpouchings that can become clogged with stool). If not then, he certainly would have when he began having recurrent bouts of fever as those pouches became infected (known as diverticulitis) in the weeks prior to his admission to the hospital.
But alas, he ended up trying to wait it out, using herbal medicines and self-treatments at home before eventually calling my mother, who is a physician, complaining that he actually had feces in his urine, and was generally feeling extremely sick. Luckily, he was successfully operated on, and the cost of his surgical care was covered by emergency Medi-Cal, California’s specific Medicaid emergency plan. The problem is obvious, from a cost-quality-access perspective, and from an ethical one.
In the United States today, undocumented immigrants cannot receive federal health insurance through health exchanges, and as a result are often left to the only mechanism that does not force them to pay — Medicaid’s emergency coverage. Moreover, this is not solely a California issue — a 2007 article in the Journal of the American Medical Association showed that 99 percent of those using emergency Medicaid in North Carolina were undocumented immigrants. Thanks to EMTALA (Emergency Medical Treatment and Labor Act), anyone who is acutely ill cannot be turned away from an emergency room in this country, but many times those who are undocumented will still avoid coming in for fear of persecution due to their legal status, as well as hospital bills that they sometimes still incur. The issue with a system such as this, where undocumented people only seek care when their health is severely compromised, is that while they will ultimately be taken care of, their health outcomes end up being significantly worse, and their cost to the hospital and healthcare system are far greater.
There is currently a push by California Senator Ricardo Lara to open access for undocumented people to purchase health insurance plans from Covered California, our state’s health exchange. His act, the Health for All Act of 2015, would expand access to roughly 1 million people who currently cannot access preventative services and insurance coverage because of their legal status. The estimated total number of undocumented people in the United States is 11.7 million as of 2015. If we let 11.7 million healthy people become 11.7 million complicated patients with advanced disease who incur expensive and ineffective treatment courses, we will find ourselves in a true cost conundrum. And if we truly care about our patients, we can’t let this happen. Remember — it costs nothing to care.
Abraar Karan is a medical student who blogs at Swasthya Mundial. He can be reached on Twitter @AbraarKaran.