After more than fifteen years of being mostly housebound by chronic illness (which includes chronic pain), here are a few of the dilemmas I’ve faced over and over. I’m confident that I’m not alone in my “should I/shouldn’t I?” world. Do I accept an invitation from a friend to get together or do I refuse it? If I refuse the invitation, depending on who issued it, it may be the last one ...

Read more...

This piece is based on personal experience and on the thousands of emails I’ve received from those who live day-to-day with chronic illness (which includes chronic pain). 1. Email. I know the joy of hearing the actual voice of a loved one. That said, email is the principal way I communicate with people. It’s hard for me to talk on the phone. It saps my energy quickly, partly because of the need for ...

Read more...

Many of us who suffer from chronic pain and illness are on medications that carry side effects that, in some cases, can be as difficult to cope with as our initial health problems. I’ve recently started a medication that I’m scheduled to be on for five years. I’m taking it because it significantly reduces the risk of a recurrence of my recent bout with breast cancer. And so, yes, I’m taking ...

Read more...

Here’s the most distressing piece of unsolicited advice I’ve received to date. It showed up in my Inbox two days after I’d completed a course of radiation for breast cancer. The email was in response to an article I’d written about this new, unexpected turn my life had taken; the article included the fact that, at the time, I was in the middle of a course of radiation treatment. Here’s ...

Read more...

An excerpt from How to Live Well with Chronic Pain and Illness: A Mindful Guide. Copyright 2015 by Toni Bernhard. Excerpted with permission from Wisdom Publications. "Freedom is instantaneous the moment we accept the way things are." - Karen Maezen Miller A well-known Buddhist story known as the Mustard Seed helped me ...

Read more...

An excerpt from How to Live Well with Chronic Pain and Illness: A Mindful Guide. Copyright 2015 by Toni Bernhard. Excerpted with permission from Wisdom Publications. "Remembrance of things past is not necessarily the remembrance of things as they were." - Marcel Proust For the most part, I’ve adjusted to my new ...

Read more...

shutterstock_193162472 November of last year found me living as best I could with several health issues, the most debilitating of which stems from never having recovered from a serious viral infection in 2001. I’ve been diagnosed with chronic fatigue syndrome, a little understood and much-misunderstood illness. It keeps me virtually housebound. For the most part, I’ve made peace with feeling sick all ...

Read more...

It’s hard enough to sustain a good relationship when neither partner is facing a health challenge. Illness ranks high on the list of life’s stressful events, so it’s no surprise that it can have a negative impact on a close relationship. Couples may benefit from counseling, one of the principal reasons being that the presence of a neutral party in the room can facilitate more calm and constructive communication. What follows ...

Read more...

My family and close friends have done so much for me since I became chronically ill in 2001, and I’m deeply grateful to them. I’ve written this piece because there are a few important things I want them to know about how I feel. Although this piece is personal in nature, I’ve been hanging out online for over a dozen years with other people who are chronically ill (which includes those ...

Read more...

shutterstock_134903705 My illness has been as hard on my caregiver-husband as it’s been on me. I know how fortunate I am that he’s stuck around and that he never complains about the extra burdens he’s had to take on. My heart goes out to those of you who don’t have someone to care for you in this way. This piece covers several ways ...

Read more...

4 Pages

Most Popular