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Life is a terminal illness

Ellen Diamond
Patient
May 23, 2014

Before I retired in 2000, I worked in a state agency as a peer counselor, or more formally, an employee assistance program (EAP) coordinator. The “coordinator” part was there because my job description wasn’t actually to do counseling; it was to assess the problem and refer the client for help.

But of course both of those processes involved counseling. We just couldn’t call it that.

In 1986, shortly after I’d begun the …

Read more…

Life is a terminal illness

Living with an illness for which there is no cure

Ellen Diamond
Patient
May 17, 2013

For the past fifteen years, I have had an incurable form of leukemia.

Such diseases used to be called terminal illnesses, but we don’t hear that term as much anymore. With all the new drugs and treatments available, doctors have become more reluctant to refer to diseases they can’t cure yet as “terminal.”

In the years just after my diagnosis, when friends and family would ask what could be done for it, …

Read more…

Living with an illness for which there is no cure

I do not require perfect health to be happy

Ellen Diamond
Patient
December 11, 2012

Recently, while reading a post in an online chat group for people with chronic lymphocytic leukemia (CLL), I spotted an intriguing comment. At an important conference, a world-renowned hematologist had referred to a “five-year timeline” for a cure.

This took me back fourteen years, to when I’d just been diagnosed with CLL. There was a Gilda’s Club near my workplace; I’d always passed it quickly on my way home. Now I …

Read more…

I do not require perfect health to be happy

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  • Most Popular

  • Past Week

    • The MCAT requirement persists as a norm, not as a tool

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