An excerpt from Saying Goodbye: How Families Can Find Renewal Through Loss. Published by arrangement with Berkley, a member of Penguin Group (USA), Inc. Copyright(c)2011. by Barbara Okun, PhD and Joseph Nowinski, PhD One of the first tasks facing families upon receiving a diagnosis is to learn more about the illness or disorder that faces them. There are many ways to do this: by visiting Internet web sites; by ...

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Advocacy is an important and vital skill for any young adult, but young adults with cerebral palsy and other disabilities have a bit of a unique need for developing the skills. I would argue that the skills needed for self advocacy need to have the opportunity to develop in small ways when a child becomes a toddler. For me, the roots of my advocacy were planted in the years prior to ...

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Doctor D has dodged some questions in his career, but he has also been on the receiving end of some non-answers and can attest to their usefulness on the patient's side of things. How can a doctor dodging a question help the patient? Let me tell you a story: Doctor D’s son Little D was born with a very rare genetic condition which required he see an expert at a big university. As ...

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Winning the lottery -- yes, I've heard the horror stories of how people's lives have taken a turn for the worse after it's happened. But, like many others, I still wonder what it would be like. I'd be willing to take my chances with the win! But this post is not about money. Not at all. Actually it's about gratitude. It's about the many 'lotteries' in life that have nothing to do ...

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An excerpt from Little Patient Big Doctor: One Mother's Journey. by Haleh Rabizadeh Resnick Dear Doctor, I want to share with you my experiences with two of my children . . . . I share the hecticness our lives with you for a reason. We are all the same. We are all busy. We all face adversity. And while we want most to trust the opinions of professionals, ...

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One thing that many residents do not know is that there are more benefits to becoming a board certified physician than just that plaque on the wall.   One of these benefits is that ability to pick up a few extra hours of work here and there doing consulting for the multitude of companies that would like the opinion or expertise of a physician. In some cases this consulting can be about ...

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I interviewed Tania Schlatter, one of the best designers I know and a guest-lecturer for Web Strategies for Health Communication, about color, imagery, and other aspects of health website design. Lisa: How is the design of health websites different than for other types of sites? Tania: The design of any site goes back to the goals of an organization and what people coming to a site need. Healthcare consumers can ...

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There are nearly 1.5 million Americans who suffer each year from preventable mistakes.  A report by the Institute of Medicine estimates that as many as 98,000 people die in U.S. hospitals each year as the result of medical errors. Most of these errors are related to drug mistakes.  That’s the bad news.  The good news is that your doctors and hospitals are trying to reduce these errors by using by using ...

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I have a patient who I will call Antonia. Antonia is in her early 70’s.  She came to the United States from Guatemala many years ago, but never learned to speak much English.  This doesn’t cause her much of a problem; her community is small and tightly-knit, so she doesn’t have much need to speak English in her home or her neighborhood.   And she has a large family—children and grandchildren and ...

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TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TED talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your mind. They don’t all hit that level, but many do. True to form, the opening session was a mind-blower. 26 year old Charity Tillemann-Dick stepped out on stage and belted out a soprano aria. I thought that was it – an opening ...

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