In a study published in the Journal of the Royal Society of Medicine, “Quality of life: impact of chronic illness on the partner,” the authors stated: "… the most striking research finding is a tendency for the partner’s quality of life to be worse than that of the patient." The people who are least likely to be surprised by this finding are not just caregivers, but those who are in their ...

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From a mother: What my childs oncologist should know Please let us know that we’re not alone. We realize that our doctors are not our friends, but telling us that the medical team will be sticking with us during this journey that we were never on board with, is an empowering message when we are at our most powerless. Show us that you care about our child, too. We know that you identify our ...

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It looks like an airport lounge without the rolling suitcases. There are about 20 of us cancer survivor-types fiddling with our phones or reading the newspaper. A few of us are sipping delicious contrast fluid in preparation for a scan, but most of us are waiting to meet with our oncologists for follow-up or monitoring visits. All of us are between the ages of 20 and 70 and all of ...

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Attempting to alter the health care marketplace so provider decisions are based on patient value has shaped my career for the last 20 years.   Often use of the health care delivery system creates a learning opportunity for me as well as the poor, unsuspecting provider of care.  A recent experience was instructive. A close encounter with a jungle rock while mountain biking sent my husband back to our cruise ship with ...

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Do I value the privacy of my health information? What do you mean? That if I email my doctor about an embarrassing symptom, only my doctor will read it? That only my doctor, my nurse and I have access to the information in my electronic medical record, including notes on our confidential conversations, prescriptions and test results? That my local drug store doesn't sell information about me to pharmaceutical companies? That if I ...

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Uncle Walt died this morning. Finally. I say "finally" because I believed this day would come four months ago, when he had emergency bypass surgery. At the time, I didn't believe Walt would live; he was an ailing, seventy-seven-year-old man with severe pulmonary disease. When his heart started to hurt one Friday, his doctors told him, "With bypass surgery, you might live. Without it, you'll be dead before the weekend is over." Walt's ...

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In fall of 1994, I was sixteen years old and sick. I had lost a lot of weight, reduced my diet to BRAT and roast chicken, filled a half-dozen stool samples, even tried a few prescriptions -- and nothing seemed to help. By that point I was seeing a gastroenterologist, Dr. C. After a pointless barium enema and follow-through, Dr. C performed a colonoscopy. From that, he gave me a definitive ...

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In 2005, my husband and I bought a small farmhouse in northern New England next door to Tom and Sally. They were in their early seventies, married nearly fifty years, with a large family. Tom's grandfather had built a farmhouse in 1900 on the family's small pig farm. In the 1970s, Tom and Sally had parceled off the land and built a modern house for themselves, a stone's throw from the ...

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Over the years, many people have shared with me their disappointment at the lack of acknowledgment from their physician when their loved one died. Especially, when their loved one had been a long time patient of the physician. In fact, many people have shared that they switched physicians because of what they perceived as a slight. When people go to a physician for many years, especially the family physician, it is ...

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In most states, doctors are mandated to ask their patients if they feel physically “safe at home.” With an aging population, perhaps another question should be added: are you financially safe? Two examples suggest the problem. “Trudy” had always managed her financial matters, even complex transactions. Aging, however, had made her short-term memory a bit more problematic and her focus diminished by TIAs. Even though her daughter shared responsibility on some of ...

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