Are doctors obligated to seek knowledge that has no medical benefit?

The New York Times recently published an article titled “A Life-Death Predictor Adds to a Cancer’s Strain” or, alternatively, “Genetic Test Changes Game in Cancer Prognosis.”  The piece is interesting on several levels, but, to me, serves to highlight an increasingly common ethical conundrum: are physicians obligated to seek knowledge that is available but has no possible medical benefit?

Most of us are familiar with the Schrödinger’s cat thought experiment (the basic setup: a cat is placed in a box, along with a device that has a 50/50 chance of killing it within the hour).  Suppose Schrödinger decided to actually carry out this experiment and you happen to be the veterinarian for the poor soul whose cat he borrowed.  Having been rushed to the scene by a distraught owner, you are faced with a choice: open the box and reveal the cat’s present state of health or wait and let the cat reveal itself by its eventual demands to be let free (or lack thereof).

Where my story runs parallel to real life: at the point of decision, Schrödinger’s veterinarian and the physician have no power over the patient’s outcome.  Their professional capacity as healer has been exhausted. The cat is either dead or alive.  The patient has Class 1 or Class 2 ocular melanoma (and its attendant mortality).  Until the proverbial box has been opened, however, neither state of affairs has quite come to pass.  The patient is neither doomed nor saved.  The physician stands as the portal of knowledge, holding the key that could dispel fear but also kill hope.

Typically, patients just want the good news.  In a perfect world, only patients with the treatable Class 1 melanoma would have the test performed.  Their Class 2 counterparts, on the other hand, would avoid it and preserve their hope until the end.  Unfortunately, this perfect world requires physicians with prescience (or an ethics “flexible” enough to perform the test without the patient’s knowledge).

What, then, of our imperfect world?  Is the possibility of relief worth the risk of a death sentence?  Further, what is the physician’s role in answering this question?  It is my belief that the option must be presented. The decision to know or not know is deeply personal.  Once he has stepped outside of his role as healer, the physician has no expert knowledge to justify any form of paternalism.  While he can serve as counselor, interpreter and friend, the physician has no right to decide if the possibility of finding a dead cat is worse than waiting next to a terrifyingly silent box.

Michael Slade is a philosopher turned medical student.  You can follow him on Twitter @MichaelJSlade.

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  • http://twitter.com/NMJUNCTION NeuroMuscular Jct.

    Doctors take this chance all the time with patients when they use toxic pharmaceutical drugs whose research has been twisted and bent to suit the profit of those pharmaceutical companies. Quite often doctors are mis-informed about these medications effects on the body.
    I would like to see this change, I would like to see doctors use more conservative means in helping patients find methods of lifestyle changes in daily diet, therapy methods that have shown to be effective and safe, aside from standard physical therapies, with research that is IGNORED by the medical community as a whole.
    Pharmaceutical companies such as Bayer have been linked to nazi war crimes. why on earth would you trust such a company with the pseudo-science they spew?
    Synthetic medications usually cause problems either in the short term or long term, because they are synthetic where the human body doesn’t like its presence, and therefore tries to do everything it possibly can to rid itself of this synthetic material, hence “side-effects”.
    Adding more toxic chemicals to the body to counter-act another toxic chemical’s effects makes absolutely no sense at all.
    FEEDING the human body biological-friendly nutrients to feed, clean & build the body makes a whole lot more sense to me, what about you? The father of modern medicine, Hippocrates said, “Let food be your medicine…” modern western medicine has steered away from these practical teachings! WHY? WHY? WHY? Is it the money?

    • JWarren

      You make some good points, NM. Ideally our medical system should focus on prevention of disease, and even chronic disease management, using as low-risk means possible, such as healthy diet, exercise, stress management, and making sure that basic needs are met in terms of supplements when needed (omega 3, vitamin D, for example.) Ideally, Family Physicians and other primary care specialities should have extensive training in this, and in counseling people to make healthy lifestyle changes. They should also be paid appropriately for these services, so they are not pressured by administrators to stay away from this kind of care, and spend more time on expensive and potentially dangerous interventions. In the US, only about 30% of physicians practice primary care – instead of 60% in countries like the many European countries, from what I understand. Our training and payment here does indeed push the system away from healthy, lower cost, and safe early interventions, and toward more expensive, late-in-the-game treatments. Also, you are right, it can be tough for physicians to cull through research to make sure that they are reading real science, and not advertisements for drugs or treatments, cleverly dressed up as science. No easy answers, many issues.

  • JWarren

    A nice beginner-physician philosophy question.
    A physician’s job is work WITH the patient, according to the PATIENT’S wishes – to provide knowledge, advice, counsel, and appropriate treatment as agreed upon by the team (which includes the patient AND medical professionals.) It is NOT the physician’s job to FORCE ANYTHING onto the patient! Not to force knowledge or treatment that the patient does not want!
    In the case presented, the physician should explain to the patient what the risks and benefits might be of knowing whether a disease is treatable, or not (and terminal.) Some patients might benefit from knowing that their disease is terminal – they can prepare themselves and their family. Other patients might be thrown into a depression and despair which ruins the quality of the rest of their lives. The physician with a clue should be discussing these possibilities with the patient, and then helping the patient decide what is best for him or her.

    I do take issue with the assumption that paternalism is necessarily part of a physician’s role as healer (evidenced in the statement: “Once he has stepped outside of his role as healer, the physician has no expert knowledge to justify any form of paternalism.) Does expert knowledge mean that a relationship is necessarily paternalistic? Hmm, not so sure about that. If my child knows more about computers than a parent, does that mean the child’s relationship with the parent is “paternalistic” in nature, with the child in the parent role?

    • http://twitter.com/MichaelJSlade Michael Slade

      My use of paternalistic can be summed up by the phrase “I know what is good for you better than you do yourself”. Expert (or at least superior) knowledge is a prerequisite for any legitimate form of paternalism (a parent to a child), but not a sole justification for it. So expert knowledge is necessary but not sufficient condition for paternalism, to be technical.

  • http://www.facebook.com/people/Michael-Rack/100001703895437 Michael Rack

    “Suppose Schrödinger decided to actually carry out this experiment and
    you happen to be the veterinarian for the poor soul whose cat he
    borrowed. Having been rushed to the scene by a distraught owner, you
    are faced with a choice: open the box and reveal the cat’s present state
    of health or wait and let the cat reveal itself by its eventual demands
    to be let free (or lack thereof).”

    Or the Vet could just ignore the situation, and the cat would remain in a half dead/half alive state (under the classical quantum paradigm, this is what would occur in the absence of an observer)

  • drseno

    What if patients and families just want the truth (which they already know inside) corroborated so they can make choices about what they want to say, do and be in the time they have remaining? I assure you that patient’s typically, do not just want good news. They want the truth. Wouldn’t you?

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