Doctors need to understand what it means to be a patient

Shortness of breath. I felt it for the first time while running on June 21st, 2011. I had just been rejected from my first choice medical school a few days prior – post-interview, the worst. I took it as a personal affront. They didn’t like me, my personality. I wondered how I had come off – fake, phony, artificially enthusiastic maybe. Maybe they didn’t think I was up to their caliber. But either way, I felt crushed, useless, as if there was a rock stuck in my throat. And now my whole life would have to change.

I stumbled home and told Brian that I couldn’t breathe and to call 911.

“Why?” he asked. “You seem fine, you’re talking okay and you just went for a run. I think you just should rest on the couch.”

I scowled at him and accepted a glass of water. The feeling didn’t subside, and I once again broached the idea of the emergency room. He suggested waiting a little longer. I picked at my sushi without really eating anything, and thought obsessively about my breathing. When Brian wasn’t looking, I broke into my stash of airplane Xanax and took a half. The feeling subsided a little.

The next day, I went to work. One of my favorite patients was actively dying. I cried – I never cry. Warm tears ran down my cheeks as I watched the nurses change the gown she had just defecated all over. My breath caught in my throat as I saw her daughter hold her corpse of a mother and collapse helplessly into the bed beside her. I couldn’t believe my favorite patient was dying, despite the fact that most of them are my favorite patients and they all have lung cancer, so they are almost always dying. But that day, it seemed unbearable. I shielded my red eyes from the attending as I pretended to grab a lab kit from the closet. The shortness of breath returned.

Two weeks went by, and it still hadn’t gone away. The feeling was more transient, but I still felt like I couldn’t get to the top of my inhalation, and breathing deeply felt like a chore. My chest had started to hurt. I thought of all the possible reasons why – lung cancer (I’d seen it in a 22 year old just a few weeks prior), pulmonary embolism (hey, I was taking birth control pills), pulmonary hypertension (what is that again?), myocardial infarction (my mom has a heart murmur, so maybe?) – all seemed equally plausible. I wasn’t coughing so it didn’t feel like bronchitis. I had never been asthmatic and heard no wheezing. I was too embarrassed to solicit the advice of one of my attendings, and by now Brian was getting fed up with the health-related freak outs.

Later that week, I had a particularly difficult time breathing when walking home from work, and I tearfully called up my doctor (again, what was with all of this crying?!) and told him my symptoms. He agreed to see me immediately. I arrived at his office and he examined me, offering to work me up for my own peace of mind but noting that he didn’t anticipate anything was wrong. An electrocardiogram, pulmonary function test, and chest x-ray later, he sat me down in his office.

“You appear to be in a state of panic,” he said, handing me a prescription for Ativan. “You might want to figure out why, and relax or something. There’s nothing wrong with your heart or lungs. You’ve got, like, Thin White Female syndrome.”

“Huh?” I retorted, “I don’t think that’s a thing.”

He gave me his best I’m the doctor and you’re barely a medical student who clearly doesn’t know shit look.

“You’re having what appears to be a two-week panic attack, but you’re physically healthy. Take some Ativan and try to calm down, and call me if the breathing gets worse.”

“Okay.” He was an idiot, but I was somewhat comforted by my test results. I left the office and threw Ativan prescription in the nearest garbage can.

My last day of work was fast approaching. Brian and I had been planning a trip to Italy for a few weeks before I started medical school. On the second day of the trip, Brian proposed. Definitely no shortness of breath that night.

But to my dismay, it returned a week later, as we were hiking up the scenic trails in Cinque Terre, overlooking the pristine waters of the Ligurian sea. This can’t be anxiety, I thought.

What could I possibly be anxious about? I’m engaged to an amazing guy. I’m vacationing in Italy. All my hard work finally paid off and despite Mount Sinai not wanting me (assholes), I’m going to a wonderful medical school. Life is good.

But –  I  shuddered –  if  it’s not anxiety, then what’s  wrong  with me? Crap, and if something is wrong with me, I’m in Italy. Questions bounced around my mind. Could whatever it is wait another week until we got back to New York? What kind of medical care do they have in Italy? Could I afford it if I needed it? Do the doctors speak English? What if I go to the emergency department, and nothing is wrong? I would ruin our perfect trip. What if Brian gets mad at me and we have a huge fight? I move down to DC in a mere few days, and what if we don’t work it out before then? Will he not want to marry me anymore?

I survived the remainder of the trip, and moving day arrived. I packed up and left everything in New York – my family, my friends, Brian, our dog. I struggled to breathe as I drove through Maryland on I-95, and chastised myself for not being mature enough to handle this.

At orientation, everyone seemed so happy and eager to get to know each other. I put on a smile and a brave face but went home at night and hyperventilated. Damn, I thought. I’m either anxious or dying. And with the daunting task of medical school ahead of me, I knew I either needed to find a way to calm down, or drop out and enjoy whatever short time I had left on earth.

The next logical step in figuring this out was a consult at student health.   At my appointment, I complained of my breathing issues, but also admitted to my initial panic attack in June. The doctor couldn’t have been nicer or gentler, but once again dismissed me as “anxious female” and handed me a prescription, this time Klonopin. I stopped him as he was leaving the exam room.

“So, let’s say this is anxiety.”

He rolled his eyes. I ignored this and continued.

“I’ve never had anxiety before, and I don’t know where this came from or why. So could we maybe, um, try to get rid of this in some way other than drugs? Maybe it will just go away as I settle into school and get adjusted.”

He sighed. “It depends on how much the symptoms bother you. If you’re having trouble breathing on a daily basis, you can try some exercises or we can refer you to the counseling center, but if it’s interfering with your studies, I would suggest trying the drugs in conjunction with that.”

I nodded. I hadn’t even thought about this interfering with “the studies” that had barely begun. I took the prescription and thanked him, telling him I’d let him know what I decided. He mumbled a “call if you want” before closing the door.

I considered all of my options as I walked home to my tiny, empty house. I thought of what I had left behind in New York – my loud, in-your-face-all-the-time Jewish mother whom I loved tremendously, my dad, sister, friends, my new fiancé, and the dog I treated as if she were my child. I realized I had approached this transition into medical school in the entirely wrong way. I had spent so much time convincing myself that I was independent, strong, destined to be a physician, mature enough to be in a separate city all by myself. I never let myself admit that this transition would be hard – something I would have to wrestle with before it became comfortable.

So it appears anxiety is an animal no less complex than the mind itself. We must know, as physicians, that while our knowledge is powerful, it is far less so without an understanding of what it means to be a patient. During this time, everyone labeled me as the classic, anxious female. The whirlwind of thoughts and emotions that made no sense in my head and had caused me endless hours of misery were, just like that, bracketed into a supposedly simple category and given a name. And although my episode appeared to be situational and acute, I won’t forget the awful feeling that medical science had provided a completely inadequate definition for what I was going through.

I remember sitting up the night after the second exam of the year with a friend I had met during orientation. Neither of us felt like trekking out to the post-exam party, so we decided to do the super cool thing and drink wine by ourselves while watching reality TV. A few drinks in, I told her about this whole experience. I confided that I didn’t really know what this anxiety episode meant for my career as a physician. There were so many things coming up – more transitions, life-altering exams, competitive classmates – I had never before doubted that I could handle it. But now, who knows? Was I subject to a panic attack at any moment? Would this make me a bad doctor?

Au contraire, my friend,” she said. “This is going to make you a much, much better doctor.”

I asked her to elaborate.

“Well, I’m just guessing,” she said, “but I’m pretty sure you’re never going to diagnose anyone as a ‘Thin White Female.’”

Samantha Kass is a medical student.  This post originally appeared in The Doctor Weighs In

It was written as part of a narrative medicine curriculum at Georgetown University School of Medicine, taught by Margaret Cary, MD. Her students’ stories reflect the depths and the heights of medical school; most importantly, the stories reflect the magic and wonder of becoming physicians.

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  • Victor Trismegistus LA

    All patients suffer and die. Phisycians do, too.

    I think we Phisycians must be aware that we’re as human as our patients – and they’re as human as ourselves! Back at 1988, when I finished Med, this was called “empathy” – which basically means “feeling the same as (someone)”.

    But then that’s quite difficult nowadays, with all that HiTech (equipment) and Last Generation (medication).

    In my time, whenever I felt such things, I used to read a book by Raymond Bradbury. I particularly liked “Dandelion Wine”.

    - This is Victor Araujo, MD, IFCAP, a Clinical Pathologist / Hemotherapst / Infection Control Professional, working at Salvador City – BA, Brazil.

  • campykid

    Samantha, for ten years I had symptoms similar to yours, with two PCPs and a cardiologist responding as your doctors did.  In 2008, I was finally diagnosed with lone, paroxysmal A-fib and flutter.  When I pulled my charts a year later, I saw that one of the MDs had diagnosed generalized anxiety disorder and stated I had “mythical and magical thinking” about my health.  Although A-Fib is not common in younger women, it does happen…

  • sFord48

    I have cough variant asthma that went undiagnosed because my pulmonary function tests were normal.  I don’t wheeze.  My PCP told me it was all in my head.

    I would speak to a psychologist if I were you for a second opinion for the anxiety.  If you are having difficulty dealing with stressful situations, there may be a better way to deal with them besides a prescription.

  • Margaret Cary

    Samantha, what an experience for you, and all too common.  Your essay made me reflect on what I’ve observed as a physician.

  • suresh_amin

    This is true.
    The central person is the patient and instead it is the EMR becomes central. We
    are alienating ourselves from the human. The patient has to participate in his
    own health by identifying himself with his doctor ( I do not like word health
    care professional ). Not long ago before objective assessment there was
    subjective healing medicine too. We have to amalgamate both

    Suresh Amin
    MD

    India

  • suresh_amin

    This is true.
    The central person is the patient and instead it is the EMR becomes central. We
    are alienating ourselves from the human. The patient has to participate in his
    own health by identifying himself with his doctor ( I do not like word health
    care professional ). Not long ago before objective assessment there was
    subjective healing medicine too. We have to amalgamate both

    Suresh Amin
    MD

    India

  • suresh_amin

    This is true.
    The central person is the patient and instead it is the EMR becomes central. We
    are alienating ourselves from the human. The patient has to participate in his
    own health by identifying himself with his doctor ( I do not like word health
    care professional ). Not long ago before objective assessment there was
    subjective healing medicine too. We have to amalgamate both

    Suresh Amin
    MD

    India

  • saunderp

    This essay is so well written.  The level of self awareness and self reflection is encouraging to see in a doctor in training.  I am proud to be associated with medical education training these future physicians.

  • MeredithKendall

    I had some issues, talked to my psychiatrist (whom I’ve only seen a few times) who looked at the labs my primary care doc ordered and said, “Uh, I think you might need to make an appointment with a specialist. Soon. We’ll try this first, but I can’t promise it will work. Give me an update in a bit.”
    I’m generally not this way, but I’ve noticed women get dismissed more than men at times. My husband and I go to the same primary care practice. The last time he had back pain, he was given three different medications (controlled substances) to choose from. Same thing the two times prior. I have back pain for the first time, and I was told to take some Aleve. A year later, and I was told to use some ice. I finally got a bit pushy about the medication issue, and I received a prescription and a referral for physical therapy. Turns out I had around ten small muscle spasms that were throwing my gait off. Aleve and ice are not bad things, but when I called to say the Aleve was wearing off after four hours and was told I couldn’t take anything else, I got a bit testy.

    I’ve talked to other women who have experienced the same thing. I’m not entirely sure what the issue is. Hm, maybe I’ll ask next time I find myself in this situation. Female doctors don’t give me that sort of flack, but there are fewer of those around here. 

    If you’ve been told “it’s all in your head,” seeing a psychiatrist might not be a bad idea because (provided they’re decent physicians) they’ll be able to tease out the “physical” versus the “mental” better than a lot of doctors. I’ve also found that they’re a lot less dismissive (if you bathe, dress nicely, speak calmly, and the education stuff doesn’t hurt – yeah, there’s issues with that, but that’s another conversation) than a lot of specialists. Over the years I’ve found they’ve caught a few things here and there that were missed by someone else, and were willing to listen to me even if lab results came back negative. 

    And hey, if it is garden variety anxiety, a psychiatrist might know who the good therapists are in town. Look into cognitive-behavioral therapy or acceptance and commitment therapy. If you can’t afford therapy, find a Buddhist. Seriously. Mindfulness has evidence to back it up. And if you’re anti-non-Christianity, Stations of the Cross is an interested and mindful experience.

    • sFord48

      Psychiatrists have a tendency to push drugs.  I prefer a PhD.

    • http://pulse.yahoo.com/_SXLE3YXLSQV54YZYNNSQJDMNO4 WonderWitch, Psychedelic Druid

       Good suggestions. As a Licensed Massage Therapist, may I recommend a Swedish or neuromuscular massage to begin to address those muscle spasms. chiropractic or accupucture might also be helpful.

  • http://twitter.com/DrMattWhited Matt Whited

    I’m glad to hear you share your experience. As a psychologist, I find it all too common that people with panic are simply medicated without an explanation of their issue and no referral to decent psychotherapy. Exposure therapy is HIGHLY effective in treating panic and often medication provides an unnecessary crutch in patients with only mild and/or infrequent symptoms. I’m glad that you will go on to identify and treat patients with panic effectively, and with compassion.

  • buzzkillersmith

    Is spilling your guts using your real name on a well-read blog in your long-term best interests?   Just sayin, young doc.

  • DD92

    I wonder if your physician would have come to the same initial conclusion about your symptoms if you were a man? Would the differential have been “thin white male” syndrome? Think of the decades that women with atypical MI symptoms were dismissed by physicians (probably with a Rx for valium)! Not prudent to allow a patient’s gender to dictate the diagnosis.

  • http://profile.yahoo.com/3YZ33K5YWBV7FUPEES5RBMMC6M bilal

    dr ahmed bilal
    dr must realize if they come across anxiety related issues and get help from a psychiatrist 

  • http://pulse.yahoo.com/_SXLE3YXLSQV54YZYNNSQJDMNO4 WonderWitch, Psychedelic Druid

    Hopefully in some century soon the Modern Medical Establishment will get over their sexism and realize that–even if it IS “all in your head”–there is STILL a problem to be dealt with ! Do they teach Med Students about Stress as measured by the life-changing events scale (or whatever it’s called) which says if you’re stressed over five hundred points worth you’re ripe for illness? I’m paraphrasing, but I know this exists. By that scale, no WONDER she was having something resembling panic attacks ! Was some sort of meditation/biofeedback or even just a nice relaxing massage ever suggested ? (I’m an LMT)  Drs. need to treat the WHOLE person, not just the symptoms.

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