The vulnerability of patients needs to be respected and honored

As are many clergy, I am a pastor who is deeply involved in the medical lives of many of my parishioners. Because of what I have seen, particularly but not exclusively with end-of-life issues, I found myself increasingly averse to engaging the medical system for my own health needs.

However, I could no longer ignore some troubling symptoms. With trepidation, I ventured in.

I have been referred by my primary care physician to two different specialists so far. They have spoken with each other, are willing to work together to do what is necessary to help restore a physical balance to my life. All are honoring the fact that I would prefer to engage in dietary and other lifestyle changes as the first, not last, option in my treatment plans.

This , in my opinion, is what everyone is looking for in our health care. I also know that my high level of education (earned doctorate), willingness and ability to articulate clearly my health history (I give each physician a dated, narrative explanation of my health history which offers far more information than the generic forms handed to new patients), and a strong self-understanding of what I will and will not do in terms of invasive tests and potentially toxic treatments, creates a very different dynamic than may be normal in patient-physician interactions.

Perhaps more to the point: I have excellent, albeit extremely expensive, group insurance and am not yet on Medicare with its completely ridiculous reimbursement policy. Plus, I’m a columnist for two local newspapers, and so have some degree of name recognition.

Honesty insists that we acknowledge that I am not the normal patient and am receiving somewhat unusual care.

That is a problem in a nation where, at the core of our communal souls, we want to believe that rank doesn’t count and all are of equal worth. We are not. I have easier access not only to the best technology but also to the best physicians who will do what all of us want: treat me as a whole person, not just a collection of separate symptoms. Others, not just the financially impoverished, but also the academically less privileged, will rarely experience what I am experiencing.

Patients, just like church members, want to know that they are actually known, not just one more nose to count for statistical purposes, or means of filling the offering plate or making sure the physician is able to meet expenses. Patients, as do church members, put themselves into extremely vulnerable positions when trusting their bodies and souls to the care of others. That vulnerability needs to be respected and honored — the essential foundation in healing in any area.

In an ideal world, all will know the best of soul and body care. For now, I applaud any movements the medical community makes as it seeks more intentionally to reengage the whole patient in caring treatment.

Christy Thomas is a pastor who blogs at thoughtfulpastor.

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  • http://www.facebook.com/marianhearne Marian Hearne

    It’s a constant battle with the so called caring profession. Collaboration between the medical profession and the patient is key to better healthcare. A lot of work needs to be done to make that happen though, it’s not always the case the patient is well enough to fight for their rights. I’m a big believer in the patient is the ‘manager’ of the whole body system and the medical profession (consultant, GP etc) are experts brought in to help sort out specific needs. It’s what they are paid for, right? When you’re a patient you are so vulnerable and in fear so the uncaring tactics of this profession have no place in the encounters. They are paid to be caring as well. Much like in business if you get in a consultant or other expert to help solve your problems you certainly don’t want to be treated like dirt. I’ve had a long 4 year battle to, I hope, bring my healthcare to a more caring and workable level. I hope it’ll work as I have a chronic illness so regular dealings with this profession are part of my life. I could’ve done with them working with me instead of fighting me all the way because I no longer wanted to be treated as a statistic and some of the medication I was on was causing more problems than solutions. 

  • Anonymous

    It is great to hear people talk about wanting other options than invasive surgeries and medications initially. I truly believe in this as well, and as Marian points out at the end of her response, medications often cause more problems than solutions. Patients like you are great to work with- you are taking responsibility that your diet and other lifestyle choices are likely causing your issues and not just looking for a quick fix. I am a strong advocate for Chiropractic and a huge part of that is the field (generally) believes that the Power that made the body can heal the body (God); that medications and surgeries should be considered last through your healing journey, not first. I will tell you that my family has been touched by an auto-immune disease similar to Lupus and that medications were a part of the healing process, but I am convinced that the larger part of the rapid success of this disease going into remission has been the holistic medicines: prayer, exercise, diet, chiropractic, massage, and overall positive lifestyle changes.  

    • Anonymous

      why has it become so politically correct to villainize organized medicine while accepting things like chiropractic and faith-healing, which have (as far as i know) no real credible evidence of efficacy? in particular on this board, promoting the notion that MDs don’t treat “the whole person” or aren’t engaged with “patient-centered” care is offensive to me.  Additionally to be regarded as uncaring is disappointing.

      • http://empoweredpractice.com/ Trista Koch

        I’m sorry you found that offensive. I
        actually was commenting on his ability to realize his role in what his
        health has come to. I was actually referred to my chiropractor by my MD and I
        respected and appreciated his willingness to do so. In fact it made me feel
        “patient-centered care” more than I ever had with him. As a whole,
        the medical profession is moving towards the patient centered care mentality,
        but in some communities you are yet to see it or are slowly seeing that
        movement. In Nebraska I have experienced firsthand amazing patient-centered
        care from MDs and hospital staff through UNMC and Creighton. It is when you get
        into some of the more rural communities that you see less and less of it, but what is important and hopeful is seeing them make changes to more collaborative, patient centered care. Because the more holistic fields of medicine are so young, you don’t see the overwhelming amount of long term research that you have with other forms of medicine, but it is there and with positive results. There is no denying that treating with medications come with side effects for most patients, and research tells us that. 
        -Trista

      • Anonymous

        As far as chiropractic goes, my insurance covers it, so I suppose someone must think it works. And my insurance is through the hospital I work at- they have their own insurance and don’t employ chiropractors, yet they cover that service. It was fashionable at one time (1970s, I believe) to ‘villainize’ chiropractic. 
        Acupuncture is alternative medicine that has been studied and found to work in some cases. 
        The field of nutritional and herbal medicine is growing all the time. 
        And unfortunately, in my experience, doctors are flippant (because it’s not their health problem) and woefully under-educated, yet will not look things up. They don’t help, yet they still charge. *That* apparently is not a problem. 
        I’m not trying to be harsh– I’m calling it as I see it. 
        I can provide real-life examples if you care to hear them. 

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