To survive with cancer, you need to accept that you are going to die

To have cancer is to change forever.  It is a devastating declaration.  Each of us copes with the diagnosis differently.   How people adjust and move on with their lives are lessons in humanity.

I take care of a patient who explained to me how he deals with incurable cancer.  Stan is active and able to enjoy grandchildren, friends and hobbies. He describes himself as happy, despite his terminal diagnosis.  The key was both difficult and simple.  He said, “that in order to survive with cancer, you need to accept that you are going to die.”

For Stan the obstacle was his struggle against the unstoppable.  When diagnosed he responded by attacking the disease. He demanded extra tests, multiple second opinions and became obsessed with an investigation of treatment choices.  He threw himself into conventional and alternative therapies.  He filled binders with data, radiology reports, tumor markers and medical articles.  He cataloged every event.  Stan was absorbed in the disease process every moment of every day and with every ounce of his being.

Wherever Stan turned, he found that his cancer was indeed incurable.  No matter what he did, he would eventually die.  Frustration overwhelmed him. The more time he spent with the disease, the more he became lonely and frightened.  He was the prototypic cancer patient…sick, exhausted, isolated and buried in medical care.  He fell away from life and started to die.

According to Stan, the answer came as a revelation.  In a particularly depressed and forlorn moment, a realization saved him. Stan did not have to fight an opponent he could not defeat.  There is no shame in mortal limits.  If he stepped back and accepted there were things he could not change, he would be alright.  Stan discovered that to be set free, he needed to drop the burden of struggle.

With his family and doctors, Stan put together a basic medical plan.  It consists of chemotherapy, nutritional support and exercise.  He has set terminal limits.  Most importantly, Stan carved out large blocks of time to be away from “health care” and return to his life.

Stan spends most of the days enjoying his family.  He has done a little bit of traveling. He has been reading and learning. He is looking forward to spring garden planting.  Stan hugs all his grandchildren every single day.  He is happy.

Each person needs to find their own way through the challenges of life and those caused by illness.  For this man the formula is difficult and simple.  Accept what he cannot change and hold on tight to the things he loves.  Seize life today, for that may be all there is … but sometimes that is enough.

James C. Salwitz is an oncologist who blogs at Sunrise Rounds.

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  • Anonymous

    A few years ago, I had brush with a serious  illness in a new city, where my doctors did not know me, It was a huge  struggle to get to a diagnosis,and fortunately it turned out okay. It was a wretched view of what patients go through, ( see Stan above- data as barrier against the truth, on both sides.)
    In the messy aftermath I f realized what” spending time” truly means,  We are doing just that , all our lives. Second, by second. It was a wake-up, and I force myself to think of the bigger picture in all things.There is a calligraphied motto on my wall , I believe by Santayana.”There is no cure for birth and deathsave to enjoy the interval”
    I am looking at this more frequently these days, as Medicare piles one more piece of paper on my desk…….But then I think of the doctors who helped me through that time, and can’t turn away from my patients.
    But I did book more time out ;)

    • http://twitter.com/DRSALWITZ James C Salwitz

      Don’t give up because of the bureaucrats.  Medicine is still the most wonderful profession and practitioners such as you who have “figured it out” are desperately needed.  However it is a paradox…when we are reminded that life is precious does that mean we live each day with more intensity or do we step back to bask in its beauty.  If you figure that one out, please let me know.
      jcs

      • Anonymous

        Thanks- 
        Somehow part of the quote didn’t come through
        “There is no cure for birth and death save to enjoy the interval”
        I won’t quit- it just requires more and more ingenuity around the beaurocracy to help may patients.
        I think we need to both step back-make sure we take a walk at lunch, ideally where you can’t see the office, and if possible blocking non emergent  calls, at least a few times a week. But intensely also- though some of my friends have taken this ( we have midlife crises-equivalents  until we die) as ditching a spouse, moving- but wherever you go there you are- and we have to work on ourselves first.

  • Rose Everett

    Question:  Why haven’t they found another solution other then chemo?  How many people develop early signs of dementia because of chemo? Also this poison travels not only to the cancer tumor but to the liver, lungs, heart, brain cells its all over.  This is an outrage that billions are invested on something we’re had for the past 40 yrs.  How many chemo sessions are given as “hope” when it isn’t necessary.  Thanks

    • Angelea Bruce

      If you’re curious, read The Emperor of All Maladies.  Very enlightening book about the history of cancer and its treatments.

      • http://twitter.com/DRSALWITZ James C Salwitz

        Remarkable book.
        A needed followup to the classic “The Dread Disease” (James Patterson, 1987).
        jcs

    • http://www.facebook.com/people/Jackie-Swenson/100000046998781 Jackie Swenson

      There are several new ‘drugs’ in the ’monoclonal antibody’ class that works as guided missles to ‘search and destroy’.  Yes, medicine has been making great stride.  There are better ways/machines to do radiation treatment now.  We are seeing more and more long-time survivors in our cancer support group.  Chemo does have the potential to cause encephalopathy and there are ways to reboot our brain through exercise and nutrition as the brain plasticity allows the neurons to rewire/reconnect (most of us don’t use but 2-5% of all the brain cells).

      Oncologists are highly trained professionals.  Whether or not a treatment is necessary needs to be determined by the doctor and the patient.  Clinical trials and experimental drugs are essential tools to ‘finding the cure’

    • http://twitter.com/DRSALWITZ James C Salwitz

      I too find disturbing the recent publications on memory loss and chemotherapy.  I look forward to the day when such drugs are no longer necessary.  The problem is that cancer is actually many diseases, all caused by injury to hundreds of different oncogenes (genes that are supposed to control growth, but become injured).  The past decades have been focused on research to understand this area (Molecular Genetics).  We are now seeing the first use of Genomics to attack these malfunctioning growth switches directly.  The coming years will see an explosion of such therapy and technology. Still, as so many suffer, the wait seems too long.
      jcs

  • Michal Haran

    I think that when we draw the line between ” cure” vs ” treatment”  we deprive our patients from the care they need. It can be cancer or any other incurable disease. 
    When we diagnose a patient with diabetes, we don’t tell them- you have an incurable disease, all we can do is give you treatment that will prolong you life and improve your quality of life. 
    Why do we say that to patients with cancer? Why is our goal CR (which we know is not cure many times) and not prolongation and improvement of life with or without the disease? 
    I recently attended a lecture about JAK2 inhibitors in myelofibrosis (which is not cancer but still a devastating disease). The lecturer described the (in his opinion) disappointing results of the trial, as it did not alter the disease, it only led to significant improvement in the quality of life of the patients. 
    The only word I didn’t understand in his lecture was “only”. Isn’t that the reason for most of what we do in our life-obtain the best possible quality of life? 
    Patients with cancer are afraid to die, but most are more afraid to suffer, to be disabled, to become a burden on their family, to lose their human dignity. 
    I believe that when you were able to provide Stan with the care and support that he needed, and the knowledge that he and his family will not suffer needlessly, that in your eyes as a physician no cure does not equate with no treatment, you gave him the place to reach this conclusion and go back and enjoy the life that he had. 
    I too learned many years ago, from one of my patients that one of the roles we have as physicians (and not something we learn in medical school)  is to give our patients the permission to stop fighting, when we know it is going to be a lost war. 

    • http://twitter.com/DRSALWITZ James C Salwitz

      I absolutely agree.  As it has been said, life itself has a terminal prognosis.  As physicians our goal should be to give patients choices to live well, and, when reasonable, as long as possible.  I think when we go to the wall with words like “cure” we sometimes confuse our patients about real possibilities and what is quality life.  
      jcs

  • scnewme

    How about recommending the great book “The Median Isn’t the Message” by the incredible Stephen Jay Gould. It’s a must-read for anyone who receives a cancer diagnosis.

    • http://twitter.com/DRSALWITZ James C Salwitz

      Thanks for the recommendation.
      Will read.
      jcs

  • http://twitter.com/LHPatientAdvo Crystal Jones

    Thank you for a wonderful article on how to live…not how to die.

  • http://twitter.com/LoisHjelmstad Lois T. Hjelmstad

    After my dx of breast cancer, I came face to face with the realization I could die. Ridiculous, since I’ve always known that I am mortal. But it’s amazing how a diagnosis can internalize that fact. It brought into focus something I had verbalized many times, “If Death did not exist, Life would have no meaning.”

    It is twenty-one years past my diagnosis and lucky me, I am 81 now. It’s pretty difficult to pretend that I will never die when I feel my body failing. But all these years I’ve lived every moment and I continue to do.

    The last sentence of my first book, Fine Black Lines: Reflections on Facing Cancer, Fear and Loneliness, reads: I have found an immense awareness, an incredible joy in treasuring each moment–and a profound gratitude that greets each day is if it were the First Morning.

    We’re all going to die. It is only in accepting that fact that we can truly live.

    • http://twitter.com/DRSALWITZ James C Salwitz

      Thank you for your comment and really thank you for writings.
      I think it is by sharing experience that we develop a baseline of wisdom in our society that helps all of cope with life’s trials.
      jcs

  • http://www.facebook.com/profile.php?id=100002551973982 Marie-Claude Birmann de Reyles

    My friend died in feb.1012, from breast cancer, with metastaes in bones end lung. She survived for 13 years, without any help as far as antalgiscs were concerned, as she was allergic to morphinics. Bur she relished every moment of those years. She painted and wrote at lot. Have a look at the site I made for her
    http://www.bernadette-son-combat.com
    When she knew she could not last much longer, she prepared the end with the palliative care team; and at the same time she had me type a booklet for her funerals. All this was done in absolute serenity, as we had been talking a lot abour her death, and then could be free to occupy our minds with living, and enjoying it. Excuse my English, I’m French.
    We both were intent with everyday life, the small things that could matter an give it a meaning, frends’ visits, going out as long as she could, and then of course painting and writing. Se stayed a week in hospital when she felt her time had come. But she had had enough of useless treatments ans exams and had the whole stuff stopped. Mainly, she loved life, and enjoyed it as long she could.

  • http://twitter.com/DRSALWITZ James C Salwitz

    It is wonderful that because she accepted what the future held, she was able to share and plan with you. Together, you saved a part of her life.  My French is not as good as your English (my grandmother would cry) but the website is quite wonderful.
    jcs

    • http://www.facebook.com/profile.php?id=100002551973982 Marie-Claude Birmann de Reyles

      The wonderful part of this long agony, in the Greek meaning of struggle, is that it wasnt against cancer, but FOR life. And there wasn’t one night in the last two years of her life, when she did not come to me before going to her room, and said ‘ well, we had some good laughs again today’. She was so with her visitors, of course, but also in private, when we were alone, and could speak in truth, not for show. Yet, there was hardly one night when I didn’t hear her weep sourly with pain, not thinking I could hear her.

  • Anonymous

    There is a book called “The Last Lecture” by Dr. Randy Pausch and Jeff Zaslow (who tragically died in an auto accident a few weeks ago), and it is inspiring reading for anyone diagnosed with cancer. There is also a video on YouTube of Dr. Pausch’s last lecture at Carnegie Mellon University. Because it is not about dying, but about LIVING. NO one knows what is going to happen tomorrow, but it is so important to live each day we are given!

  • Anonymous

    Lovely article, loved what you said and the way it was written.  Thank you.

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