It is not easy being a patient-consumer, but it can be done

I would like to share a story about my son’s recent surgery that, while only one simple case, reveals the foundational problem with the U.S. health care system.

I write this story as a father of a 12 year old boy who has cerebral palsy. Jack is fortunate to be healthy and active with minor medical needs. As he has grown he experienced some issues with contractures in his right lower leg which recently required a minor 2 hour outpatient surgical procedure. That is where our saga begins.

When Jack’s surgery was scheduled I started the time consuming process of getting price estimates from the surgeon, anesthesiologist and the facility since we have a high deductible insurance plan. The physician fees were straight forward and relatively easy to obtain, not so with the facility. Jack’s surgery was scheduled at the local hospital’s outpatient surgical facility. I called the hospital to request a price for the surgery and they said they couldn’t really tell me. They offered to send the procedure codes to an external reviewer who would provide a general idea of the anticipated charges. Three days later the answer came back at $37,000. I reiterated that I had high deductible insurance and needed to know the actual price they would bill me after an insurance adjustment to the network fee schedule.

The hospital next referred me to my insurance company. The insurance company referred me to their PPO network. The PPO network said that they could not reveal the prices until after the case was performed. I called back to the hospital.

At this point the hospital said that they could not tell me how much the discounted price would be either and they also wouldn’t negotiate a cash price with me. They expected the discounted price to be in the range of $15,000 to $25,000. They also offered to limit my out of pocket portion to $10,000. I am now on day six with over a dozen phone calls; not the price I expected for a 2 hour outpatient procedure.

I asked my son’s surgeon if he ever operated at any independent Ambulatory Surgical Centers (ASC) and if so would that be an appropriate place to perform my son’s surgery. As it turns out there is an ASC in the ground floor of his office building and it would be no problem to do the surgery there. One phone call and 10 minutes later I have the exact price for his surgery- $1,515.

My son had his surgery and is doing well. We got a fair price because we demanded more of the system.

This simple surgery makes me pause to consider so many issues we face in our health care system. Why does it take days and dozens of phone calls to get pricing information from hospitals? Why can’t hospitals provide upfront prices for their services? Why do they expect to bill patients unknown amounts that they determine after patients have already received care? And what about the patients that don’t know the system. Would a patient facing a $40,000 bill delay or defer surgery when they might get the care they need if they were able to use the $1,500 center? Do they know to ask? No. Does anyone really help them? No.

And what about the healthcare providers. Why didn’t my son’s surgeon recommend the ASC in the first instance? Why hadn’t the surgeon done a single procedure in the ASC in over 2 years? At 10 cases per surgical day, at about $20,000 more per case; how much has this practice cost patients, employers and insurance companies? Millions each year for one surgeon and his patients?

It all goes back to our foundational problem with U.S. healthcare. The business model of our health care system is based on third-party payments from insurance and government. This has evolved to the point that many patients and providers don’t stop to consider why they shouldn’t spend $37,000 for something that could easily be delivered for $1,500.

It is not easy being a patient-consumer, but it can be done. Let’s hope the system moves in a direction that allows this to happen.

Jeffrey Rice is CEO of Healthcare Blue Book.

Costs of Care has launched its annual 2011 healthcare essay contest, with the goal of expanding the national discourse on the role of doctors, nurses, and other care providers in controlling healthcare costs.  The contest will solicit stories from care providers and patients across the nation that illustrate everyday opportunities to curb unnecessary and even harmful health care spending on a grassroots level. 

Costs of Care will award $4000 in prizes to top submissions. Two $1000 prizes will be reserved for patients, and two $1000 prizes will be reserved for care providers.

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  • Anonymous

    Well done! I have been advocating hyphenating patient-customer for quite some time. Kudos to you for taking on the health care beast.

  • danine rydland

    I recently had several cardiac tests done at our local hospital.  They give a significant “cash up front” discount.  I was amazed that they had no idea what some of them actually cost.  Unfortunately, there was no alternative place to have them done. 

  • Anonymous

    The problem is that all these hospitals just throw a price out there and the insurance companies pay what they will and it’s accepted.  And they aren’t going to tell you what they accept as payment from the insurance companies.  This is why all insurance needs to be a contract between the company and the patient–no “middle men” (ie hospitals, doctors, therapy units) are allowed.

  • Anonymous

    We have allowed our least respected profession (insurance) to take over our most respected profession (medicine).

  • Marty Tousley

    We all need to wake up and start paying attention to the hidden costs of health care in this country!

  • Anonymous

    My specialist confides that his hospital has to bill three times what a procedure costs in order to get reimbursement of the real costs, and also says success rates in his profession range from 25 percent to 90 percent, but that patients can’t easily find out who is good. Thank you Dr. Rice and good luck with your Healthcare Blue Book venture. We need good consumer information on the costs and quality of medical services or we will never “bend” the health care cost curve. Who do you think will do a better job of finding fair pricing and inspiring price competition in health care, millions of consumers (maybe you should call them im-patients?) or thousands of bureaucrats? I think that’s a slam-dunk.

  • Daniela

    I’m glad your son is doing well. Asking for pricing on healthcare is really important and it’s absurd that this information would be hard to get. It’s hard to ask those questions and it stings when after the fact you find out how expensive things really are.

  • Anonymous

    It is easy to recognize the promulgation of the association of poverty, dependency and the disabled.  Independent of the nature of disability and independent of the age of the disabled individual (in this case a 12 year old child) the ostricization and isolation of the individual can start from his own family.  It is not a coincidence that ht e voice of a physician and a lawyer was loud enough to prevent discrimination and denial of medical treatment for his son.  Not every disabled individual can rely on a family member who acts as their advocate despite the stigmatization that disability brings to the disabled individual and his family.  Maybe the family has to be the first social environment in which discrimination, isolation of the individual has to be stopped.

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