Complications of pregnancy and the conspiracy of silence

Most pregnancies are completely straightforward. A woman gets pregnant, she has a normal pregnancy that lasts nine months, she delivers a healthy baby, and she takes her baby home. End of story. But not all pregnancies are so straightforward. Complications develop. Challenges arise. Doctors guide their patients through unknown experiences, and parents make choices they couldn’t have dreamed possible before embarking on the road to parenthood.

Complications of pregnancy occur anywhere between 10% and 90% of cases, depending on your definition of “complication.”  Such a spread indicates that we really do not know what the real number is, that we do not seem to agree on the definition, or both.

What most people agree upon, tacitly however, is that complications of pregnancy are not  subjects to be discussed openly. Books on normal pregnancy abound. There are no books, for the general public, dealing with complications of pregnancy. TV programs and radio shows cover normal pregnancies with ease, but are uncomfortable dealing with abnormal pregnancies. If a woman asks her doctor or midwife about potential complications, chances are that they would want to know why she asks, since her pregnancy appears to be normal.

I call this unwillingness to publicly discuss complications of pregnancy, a “conspiracy of silence.”

Historically, women have been carrying the burden of reproduction alone. Not having a “normal” pregnancy became a social stigma.  For example, a baby dies before birth, it is the woman’s fault since she cannot carry the child to term. Women today are still facing the unspoken burden of an abnormal pregnancy.

In the early 70s, the American Board of Obstetrics and Gynecology, recognized that the complexities of today’s obstetrical practice required the establishment of a new subspecialty known as maternal-fetal medicine. These new specialists are those carrying for women with complications of pregnancy, be this maternal or fetal.

This, however, did not change the general public, or professional, approach and attitude to not openly discuss problems in pregnancy. This attitude is unique to pregnancy. We speak freely about cancer, heart disease, HIV, diabetes, or any other health problem. Actually, we feel it is our duty to educate the public, so that preventive measures can be taken to decrease and treat these conditions.  Yet, we are quite cavalier when it comes to pregnancy. The fact that the public at large has been very vocal and concerned about the “medicalization” of pregnancy in general and labor and delivery in particular, has helped foster this attitude.

Why is it that this state of affairs exists, and what is conspiring against a change in attitude? There is an unacknowledged superstition, going back to times immemorial, that by not talking about a potential bad outcome we will be able to avoid it. But worldwide, some 500,000 women die in childbirth each year. In spite of concerted efforts, about 400 women still die each year in childbirth in the United States.  Health care professionals, be these family physicians, obstetricians or midwives, perpetuate this unwillingness to openly discuss complications of pregnancy, primarily because they do not want to upset or frighten their patients.

Are we to perpetuate this state of affairs or should we make a concerted effort to change the status quo?

To answer this question, we need to look at some hard facts.

A look at available statistics shows that, prior to pregnancy even being detected, 50% to 70% of all conceptions are lost, most of them during the first month. Once pregnancy is confirmed, about 10-15% will miscarry. One out of 8 pregnancies will end in preterm births, i.e. before 37 weeks gestation, with infants at a greater risk of death in the first few days of life. Survivors are prone to a variety of complications, long term disabilities or intellectual and learning disabilities later in life. Early or premature rupture of membranes prior to term may occur in 8% of all pregnancies.

Early labor and/or infection may follow with potential serious consequences for both mother and infant. Hypertensive disorders occur in 5% to 10% of pregnancies. Serious infection of the kidneys occurs in 1% to 2% of pregnancies. Diabetes in pregnancy (gestational diabetes) is diagnosed anywhere between 2% and 10% of pregnant women.  3%  to 5% of all newborns are born with congenital anomalies.

To these statistics one must add unexpected labor and delivery complications,  pregnancies that occur in women who already have prior medical conditions complicating pregnancy, the increase in multiple gestation as a result of fertility treatments, the risk associated with advanced maternal age at first pregnancy due to career and other life goals, and a myriad of other mishaps.

While pregnancy is a normal occurrence essential to our very existence as specie, it is not always benign in its course or outcome. It is our responsibility to make such information available and break the circle of this conspiracy of silence. Knowledge is not frightening.  On the contrary it does away with the fear of the unknown and allows for preventive measures to be taken, whenever possible. I believe the time has come to lift the veil of silence regarding pregnancy complications. This conspiracy of silence is doing harm, which is a complete contradiction of our oath to “Primum non nocere,”  first do no harm.

Silvio Aladjem is Professor Emeritus, Department of Obstetrics and Gynecology,College of Human Medicine, Michigan State University.

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  • http://www.facebook.com/profile.php?id=613905265 Bambi Chapman

    I agree. I wish more people discussed pregnancy complications. Pregnancy isn’t rainbows and unicorns all of the time and sometimes, death is involved (which is only spoken about if it is maternal). It is time to get real. 

  • http://pulse.yahoo.com/_MQOK6UL2J6CZOFIU27AGST4DZM Kilgore

    Or you could explain pregnancy complications as a “Hydatoxi lualba” infestation.

  • http://www.facebook.com/people/Terence-Ivfmd-Lee/1523282856 Terence Ivfmd Lee

    The conspiracy of silence has been greatly but not completely dimished, by the power of internet communities. People are emboldened to communicate with others online, others who share similar stories. Furthermore, the things you point out regarding problems of pregnancy are also applicable to the problem of “no pregnancy”. In other words, many women who don’t even get pregnant are hesitant to discuss it because just as you mentioned the social stigma for women who get pregnant and then lose the pregnancy, there is social stigma suffered by women who don’t even get pregnant in the first place.

  • Anonymous

    If we could link pre-eclapmsia to autism, there’d be no more silence.

  • http://www.facebook.com/people/Kendra-Downey/1176961575 Kendra Downey

    More than 50% of pregnancies in the USA are “unintended”. I wish the adds for contraceptives on TV had to compare the risks of using Yaz to the risk of carrying a pregnancy to term and having a baby, especially for a 16 year old. And how about, when showing the woman who has decided to terminate her pregnancy the ultrasound picture, the clinician also has to give her information about the risks of continuing her pregnancy vs. having a first trimester AB.

  • http://twitter.com/HeartSisters carolyn thomas

    Thanks Dr. Silvio for such a very important message. When I was hospitalized with a heart attack in 2008, doctors asked me
    if I’d ever been a smoker, if I had ever been treated for diabetes/ high
    blood pressure/ high cholesterol, if I had a family history of heart
    disease. But I have never been asked by any cardiologist if I’ve ever been diagnosed with pre-eclampsia or other pregnancy complication. Nor was I warned when I WAS diagnosed with pre-eclampsia years earlier during my first pregnancy that this condition would increase my risk of heart attack by 2- to 3-fold. More on this at: http://myheartsisters.org/2010/12/12/pre-eclampsia-link-heart-disease/ 

    Pregnancy complications – including pre-eclampsia, gestational diabetes, pre-term birth, miscarriage, etc -  have been “strongly linked” to cardiovascular disease in the mother. Studies by Dr. Graeme Smith at Queen’s University in Kingston, Ontario, for example, have found that women who had been diagnosed with pre-eclampsia went on to develop higher blood
    pressure, LDL cholesterol, blood sugar and body mass index levels than unaffected mothers studied. When I interviewed Dr. Smith for my blog ‘Heart Sisters’ and asked him if pregnancy complications should now be added to known risk factors for women’s heart disease, he replied:

    “There are three times in a woman’s life when she is seen by a health care professional on a regular basis: 1. as a newborn/toddler, 2. when (if) she develops a chronic disease, and 3. when she is pregnant. Pregnancy is a window of opportunity to screen women for health risks to ensure health preservation and disease prevention.”

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