How a tyranny of health is bad for both patients and physicians

Something happened to the public perception of health and medicine in the 1970s. People began to adopt — and financial interests and the media began to profit from – “healthy lifestyles.”

This was not without consequences.

• Americans became increasingly preoccupied with diet, exercise, and health habits.

• There was a big uptick in the use of alternative “medicine” and stress reduction practices – acupuncture, chiropractic, herbalism, naturopathy, nutritional therapies, yoga, massage, biofeedback.

• The increase in news and advice columns on health and wellness made people more anxious about their health.

• The public sought medical care much more frequently for symptoms that would have been considered insignificant in the past.

Was “healthy lifestyles” a medical idea?

Health awareness and anxiety are nothing new. Throughout history people have been concerned about threats to their health. Bubonic plague killed 200 million people. The death rate for women who gave birth in the 19th century was 400 per 100,000 births, compared to 10 per 100,000 today.

Before the last century, physicians had very little to offer patients that would cure or prevent disease. This left the field wide open for quacks and charlatans, who could prey on health anxieties to sell their wares. By the late 20th century, however, modern medicine had a great deal to offer. Plus, it had won the confidence of the public – something medicine lacked in the days when the only “cure” was bloodletting or purging (the use of ultra-strong laxatives).

It seems reasonable to ask, then, if the emphasis on healthy lifestyles in the 1970s originated with the medical profession. Americans were living longer and suffering from the diseases of old age (cancer, heart disease, arthritis). Epidemiological research – observing the health and habits of citizens in various countries or ethnic groups – identified associations between lifestyles and diseases (eat yogurt and live to be 100, like the citizens of Georgia; eat soy products and avoid breast cancer, like the Japanese). One can easily imagine that the idea of telling people to be responsible for their health habits came from the medical profession.

But no, it did not.

The dark side of medicine

The emphasis on healthy lifestyles, although salutary in many ways, has a very dark side to it and has led to the increasing peril of a tyranny of health in the United States.

The quotation is from Dr. Faith Fitzgerald, writing in The New England Journal of Medicine in 1994. This was followed in 2000 by Dr. Michael Fitzpatrick’s book, The Tyranny of Health: Doctors and the Regulation of LifestyleHow a tyranny of health is bad for both patients and physicians. There was also this statement from O. H. Forde of the Institute of Community Medicine in Tromso, Norway:

The moral and coercive crusade for increased risk awareness and purity in life style can too readily take on the form of cultural imperialism towards conformity. Epidemiologists and the health care movement in general have a mandate to fight disease and premature death: they have no explicit mandate to change culture.

Dr. Fitzgerald’s article in the NEJM addressed the down side – or, as she calls it, the “dark side” – of a medical climate that holds individuals responsible for their health. Such a climate assumes that those who are unhealthy have committed a crime against society. After all, society must pay their health care costs, whether it’s through Medicare and Medicaid, lost time from work, or treatment centers for substance abuse.

Society in turn will expect physicians to educate their patients, to eliminate their unhealthy behaviors, and somehow to coerce them into adopting healthy habits. A “tyranny of health” is bad for both patients and physicians.

What penalty should we impose on the irresponsible?

The push for healthy lifestyles came not from the medical profession, but from political, economic, and social forces of the 1970s and 1980s. It was presented to the public as the need to take “personal responsibility” for one’s health.

The shift in health responsibility from the state to the individual – known as “healthism” — was very successful. Medical journals today – as well as health advice columns — write about the importance of the individual’s behavior in preventing disease.

A recent commentary in the Journal of the American Medical Association asks: If individuals don’t use preventive services, “what kind of penalty … would be ethically and morally acceptable?” The question wasn’t “How do we account for unhealthy behavior,” but what punishment would be sufficient either to change that behavior or at least to save money by denying these people health care.

When “personal responsibility” is endorsed by the authority of the medical profession, we no longer see that healthism is a political position, not simply a medical opinion. And because we don’t see this, it doesn’t occur to us that our attitude towards our own health could have taken a different path, and perhaps it still should.

Jan Henderson is a historian of medicine who blogs at The Health Culture.

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  • http://www.entrepreneurialmd.com Philippa Kennealy MD MPH CPCC PCC

    A delightful antidote to this tyranny may be found in Dr Ray Bennett (MD)’s concise, impudent and insanely sensible little book “The Underachiever’s Manifesto”.

  • http://www.TheHealthCulture.com Jan Henderson

    Thanks, Philippa. Sounds like he may have a good idea for both doctors and patients.

  • Teresa Morris

    The following quote is confusing and backward:
    “The shift in health responsibility from the state to the individual – known as “healthism” — was very successful. Medical journals today – as well as health advice columns — write about the importance of the individual’s behavior in preventing disease.” In what way did the state turn over its responsibility of individual health to the individuals? In what way did the state accept responsibility for individual choices of lifestyle before the 1970s? The truth seems to be the exact opposite as that noted in the articl; in fact, the state has taken responsbility for individual health from individuals and from this state-claimed responsibility comes the tyranny of the healthy lifestyle. Witness the state movement against transfats and salt in New York, Michelle Obama’s (very expensive) war against school lunches and other areas of unhealthy diets in America, and the new healthcare law that requires restaurants to place nutritional information on menus, etc. None of this has to do with the personal responsibility of individuals or parents of children: the state is making policies in order to force the change in individual lifestyles and choices it [the state] deems necessary in order for one to live a healthy lifestyle. Although the attention to healthy lifestyle and resulting health tyranny may not completely be the fault of doctors, it certainly is a political movement – something happens to ordinary people who become elected officials to make them think that suddenly they are health experts as well, and they force, through policy or mandate or whatever way they can, to take away the freedom of individuals to make ‘unhealthy’ choices. The tyrannical healthy lifestyle movement is a vehicle by which politicians, doctors, drug companies, and all related professions and business claim power over the general public.

    • http://www.TheHealthCulture.com Jan Henderson

      For my thoughts on legislating health behavior, see my recent post “Soft drinks and food stamps: From bad to worse” (http://bit.ly/bpqqKa). I do think Michelle Obama’s strategy is a wise one. Rather than legislation, she advocates working with food industries to help them see that certain changes in the direction of health are in their interest. After all, it’s not hard these days to sell products when you claim they’re healthy (and not a bad idea as long as the claim in true).

      “In what way did the state accept responsibility for individual choices of lifestyle before the 1970s?”

      I can’t see that I said that. Like you, I believe just the opposite. Before the 1970s we had the Great Society and the introduction of programs like Medicare and Medicaid.

      “In what way did the state turn over its responsibility of individual health to the individuals?”

      I started blogging two years ago because I wanted to understand precisely this. I started wondering: How did we end up living in a world where there is so much information on health (much of it contradictory from one day to the next), where we feel personally responsible for our health, where we blame our own poor “lifestyle” habits if we get sick, where we judge the health lifestyles of others and are so proud of our own healthy habits?

      Why did medicine and ideas about health change in the 1970s? Prior to that time, the policies of the Kennedy and Johnson administrations had assumed the state should be responsible for the health of its citizens. When political and economic thinking became more conservative in the 1970s and 1980s, governments began to promote the idea that individuals were personally responsible for their health and should practice healthy lifestyles. This new message appeared in the Canadian Lalonde report of 1974 and the Surgeon General’s Report of 1979 (“Healthy People”).

      A large segment of the population – mainly the educated and economically secure – welcomed these ideas. Feeling personally responsible for one’s health and practicing healthy lifestyles gives one the reassuring illusion of control. In particular, it’s a good distraction from the things that are beyond individual control, like salmonella in our peanut butter and the superbug MRSA at the gym.

      I was caught up in the healthy lifestyles attitude myself. When I look back, I could kick myself for not recognizing what was going on. Public opinion could have been rallied to support those health issues that need government backing – workplace safety, a healthy environment, an equitable distribution of access to affordable health care. But politics took a different path and the public went jogging.

      I have nothing against healthy behavior and the concept of prevention. What bothers me is misleading the public for political purposes. Aside from smoking, the evidence for changing behavior is slim – either it doesn’t last (obesity) or, in some cases, it turns out to be wrong (all fats are unhealthy, fruits and vegetables prevent (all) cancers, HRT).

      A cause and effect relationship between a healthy lifestyle and disease prevention (healthism) has not been established by scientific evidence. There is a strong suspicion that those who practice whatever prevention lifestyle is currently fashionable are better educated, more affluent, and initially healthier than those who do not. Disease prevention is as much an issue of social and economic inequality as it is a matter of healthy lifestyles. To argue that those who become sick should be denied insurance because, after all, their behavior and thus their health was under their control, is not worthy of an egalitarian society.

      The foods we choose to eat may be a matter of personal responsibility, but the emphasis on freedom of choice ignores the billion-dollar marketing environment in which we make those choices. And it’s not just advertising. We’re not free to choose if we’re unaware of the enormous financial power the food industry wields behind the scenes, where it influences Congress, the FDA, universities, and nutritionists. The food industry has intimidated those who might speak out by threatening and instigating lawsuits. When Oprah Winfrey made a public comment about beef in a conversation about mad cow disease, she was hit with a $10.3 million class-action suit from Texas cattlemen. She won the case, but her legal fees were said to exceed a million dollars.

      The Center for Consumer Freedom, an organization that promotes the interests of the restaurant and food industries, has as its slogan: “Promoting personal responsibility.” This is an example of healthism. Healthism promotes personal responsibility for health as a way to avoid the social, environmental, and (primarily) economic factors that affect our health. It assumes everyone can adopt “healthy lifestyles” without acknowledging the difficulty of changing behavior. It also has an unfortunate tendency to blame the victim when disease develops.

      At first glance, it seems obvious that healthy lifestyles are in our interest. And they are. But when one segment of the economy prospers at the expense of national health, we should identify and openly discuss the tactics employed behind the scenes. Only then will we be free to choose.

  • JPB

    The other problem is that everyone thinks that they know what a healthy diet is, but there is actually a lot of disagreement among the experts. Also, much “preventive care” is not truly preventive but finding things earlier…
    Personally, I don’t want the government telling me what to eat or dictating what medical care I must have!

    • http://www.TheHealthCulture.com Jan Henderson

      JPB – I agree. See my reply to the previous post.

  • Jeanja

    I think health has taken over the slot that used to be occupied by religion in many Americans’ minds. Living a “healthy” lifestyle has become a *moral* issue. Just listen to the choice of words people use in talking about health: “I feel so guilty about eating the whole pint!” “That cake was sinfully delicious!” “She must have no self control, considering how fat she let herself get.” Or consider this sign I saw at the gym recently: “Get exercise off your conscience.”

    But moral judgment does not have to be part of health, as I discovered during Oktoberfest in Munich. Germans had been telling me that Americans still showed their Puritan heritage, but I didn’t understand what they meant. I was enjoying my beer as much as they were!

    However, upon leaving the Oktoberfest grounds, I had a little accident. Passersby stopped to help. And to my surprise, there was not the slightest hint of negative judgment when they asked me, “So you were at Oktoberfest?” I was shocked at how purely factual the question was. I felt guilty that my drinking had led to an accident. But they acted like it was a normal part of a well-lived life. And perhaps it is.

  • http://www.TheHealthCulture.com Jan Henderson

    On the subject of the scientific validity of preventive measures – or more broadly, the reliability of medical research — there’s an excellent article in The Atlantic (http://bit.ly/93zTjC) by David H. Freedman, author of Wrong: Why Experts Keep Failing Us—And How to Know When Not to Trust Them.

    “In poring over medical journals, [Dr. John Ioannidis] was struck by how many findings of all types were refuted by later findings. Of course, medical-science “never minds” are hardly secret. And they sometimes make headlines, as when in recent years large studies or growing consensuses of researchers concluded that mammograms, colonoscopies, and PSA tests are far less useful cancer-detection tools than we had been told; or when widely prescribed antidepressants such as Prozac, Zoloft, and Paxil were revealed to be no more effective than a placebo for most cases of depression; or when we learned that staying out of the sun entirely can actually increase cancer risks; or when we were told that the advice to drink lots of water during intense exercise was potentially fatal; or when, last April, we were informed that taking fish oil, exercising, and doing puzzles doesn’t really help fend off Alzheimer’s disease, as long claimed. Peer-reviewed studies have come to opposite conclusions on whether using cell phones can cause brain cancer, whether sleeping more than eight hours a night is healthful or dangerous, whether taking aspirin every day is more likely to save your life or cut it short, and whether routine angioplasty works better than pills to unclog heart arteries. …

    “Doctors may notice that their patients don’t seem to fare as well with certain treatments as the literature would lead them to expect, but the field is appropriately conditioned to subjugate such anecdotal evidence to study findings. Yet much, perhaps even most, of what doctors do has never been formally put to the test in credible studies, given that the need to do so became obvious to the field only in the 1990s, leaving it playing catch-up with a century or more of non-evidence-based medicine, and contributing to Ioannidis’s shockingly high estimate of the degree to which medical knowledge is flawed. That we’re not routinely made seriously ill by this shortfall, he argues, is due largely to the fact that most medical interventions and advice don’t address life-and-death situations, but rather aim to leave us marginally healthier or less unhealthy, so we usually neither gain nor risk all that much.”

  • Maja

    Hi Jan,

    I’m trying to locate the article in NEJM for Dr. Faith Fitzgerald’s quote you used, do you have the volume and issue number for that article?

    Also, do you have the article information (i.e. year, volume, issue) for the “recent commentary in the Journal of the American Medical Association?”, you mention at the end of your article?

    Thank-you
    Maja

  • HJ

    The “healthy lifestyle” industry thrives because someone can make money off people’s fears.

    • http://www.TheHealthCulture.com Jan Henderson

      HJ – Very true. There’s a great deal of money to be made and it’s quite tempting, unfortunately.

  • http://www.TheHealthCulture.com Jan Henderson

    Hi Maja,

    Comments appeared to be closed on Monday, but I see there now open again.

    Links to both references were in my original post (http://bit.ly/d1WiGS), but weren’t reproduced here.

    Faith T. Fitzgerald, M.D., The Tyranny of Health, The New England Journal of Medicine, July 21 1994, vol 331 no 3, pp 196-198.

    There’s a summary available at http://bit.ly/d9BJ2d . I believe the full article used to be available, since I have the whole thing as a file. Perhaps it was changed in the recent update to NEJM’s website (where they digitized everything back to 1812).

    Here’s the reference for the JAMA quotation:

    Robert H. Brook, Rights and Responsibilities in Health Care – Striking a Balance, The Journal of the American Medical Society, June 9, 2010, vol 303 no 22 pp 2289-2290

    There’s a summary at http://bit.ly/bhq6c6.

    There was a very interesting exchange of letters in response to Dr. Brook’s commentary. (I was just about to blog about this.) Two PhDs from a public health school in the Netherlands wrote that evidence does not support prevention programs and incentives at the individual level. And, “Focusing on individual responsibility reinforces existing socioeconomic health inequalities.”

    Dr. Brook replied that he agreed with “virtually everything” they said. His argument is somewhat nuanced. He seems to be saying that if we focus on personal responsibility for health in the upper and middle classes, this will save money that can then be used to improve the health of those who are socially disadvantaged.

    In my opinion, that’s a big “if.” I’m sure money could be saved, but one would need to stipulate in advance how it would be spent. And then cross one’s fingers that the political climate remains favorable to such an expense.

    Here’s a link to the first letter (http://bit.ly/bPjt11) and the reply (http://bit.ly/cCDUFA).

  • http://www.TheHealthCulture.com Jan Henderson

    Jeanja – I agree. In a secular world, one still needs a set of guidelines on how to live one’s life, and health injunctions can be very appealing.

    I think the Germans are not as easily embarrassed about matters of the body as are Americans. It’s really interesting how the various European countries and the UK differ from the US in matters of both health and health care.

  • http://Www.Twitter.com/alicearobertson Alice

    But that is a “healthy” fear. I do not want more government regulation, and agree that sometimes the capitalists neeis policing….but it is a good time in history to understand our choices (I am for education, not agendas that profit our representatives).

    At least if I make unhealthy choices I will not proclaim victimhood, but I agree with our doctor that the real problem is not choices, but ignorance.

  • http://www.aneurysmsupport.com/ Mike

    “The shift in health responsibility from the state to the individual – known as “healthism” — was very successful.”

    Though it may soon change I’d like to know just when the “state” was ever responsible for my health.

  • http://AmericanHealthScare Richard Young, MD

    Jan,

    Great article and comments. It continues to befuddle me why so many physicians continue to rabidly insist patients receive costly preventive interventions, because the cost-effectiveness literature so clearly shows an ounce of prevention costs a ton of money. People who decline preventive medical interventions shouldn’t be fussed at or praised, just left alone.

    Obesity is a great example of how not all health problems are best addressed by the healthcare system. Obese people could save money and live longer if they just ate less food. Easier said than done I realize.

    Organized medicine has really dropped the ball by not engaging the business community and the greater society in a discussion of the bang for the buck of things we do to people. It’s their money and we should be more respectful of that.

    • http://www.TheHealthCulture.com Jan Henderson

      Hi Dr. Young – I checked out your website and really like what you have to say. The public is not only scared into buying more health care services than they need, but scared into believing they’re at high risk of being sick when they’re health is actually normal. As you say, special interest groups in the medical profession – while their intentions are in many respects motivated by genuine concern for patients – are part of the problem.

      There was a great editorial during the health care debate by Dr. H. Gilbert Welch. Dr. Pho wrote a piece on it here at KevinMD (http://bit.ly/oFEXR).

      “In the past, people sought health care because they were sick. Now the medical-industrial complex seeks patients. It encourages those with minor symptoms to be evaluated and urges those who feel well to get ‘checked’ — just to make sure nothing is wrong.

      “So, if health is the absence of abnormality, the only way to know you are healthy is to become a customer.

      “But healthy people aren’t great customers; they’re like the people who pay off their entire credit card balance each month. The money is in those in whom an abnormality can be found.

      “The medical-industrial complex has made that relatively easy to do.

      “It develops diagnostic technologies able to find smaller and smaller abnormalities.”

      There’s a very fundamental issue here: The definition of health has changed. Dr. Fitzgerald, in her 1994 article on The Tyranny of Health, made a similar point about the negative consequences of defining health as a perfect state of wellness. (I wrote about this recently at http://bit.ly/aKognV.)

      “Obese people could save money and live longer if they just ate less food. Easier said than done I realize.” There was an interesting discussion on this subject recently here at KevinMD (http://bit.ly/bvOHjR) in response to Dr. George Lundberg’s post that said the obese should simply stop eating. My guess is it’s not only easier said than done, but more complex than we currently understand.

      “It’s their money and we should be more respectful of that.” I hear that respectful sentiment throughout your website and blog, both towards patients and your fellow physicians. It’s very nice to hear that voiced. Best of luck to you in advancing a much needed conversation in such a constructive direction.

  • http://gritsandpurls.wordpress.com Michele

    One thing about expecting a person to be responsible or accountable for something is accepting the decision that the person makes when given that responsibility. If you tell me I am responsible for something and I make a decision (e.g., not to take a screening test because I won’t get actionable data), then the establishment has to be willing to accept my decision. I have a PhD in genetics and I had a lot of genetic screening pushed when I was pregnant. I faced a lot of pressure from a genetic counselor when I said “no”. I knew what kind of data we would get from really early screenings; I knew it would be ambiguous at best because of my age and the way the statistics were calculated, and these data would not be actionable. I knew what tests I wanted and when I wanted them.

    I really think we do entirely too much screening and fear mongering in health care these days, not just with pregnancy. I’ve seen folks trying to keep up with so many “numbers” that they are continually stressed out and cannot sit down to a single meal without worry–so every meal becomes a source of stress, a chance for cortisol to shoot through their bodies. Caring about our health is one thing; obsessing over it is another; and being hounded about it is entirely something else (dare I say bullying?). I’ve seen seniors who get their cholesterol levels checked at every opportunity–sometime several times a month at any free screening. There’s no follow up, very little explanation, and more obsessing. This isn’t good.

    • http://www.TheHealthCulture.com Jan Henderson

      There’s an excellent article in a recent New Yorker on the history and current state of cancer treatment. It ends with a comment on just what you’re talking about – excessive screening and how that creates unnecessary anxiety. (http://nyr.kr/cnlQzy)

      “… legions of the screened and the tested, who become more and more aware of the dangers battering away at their cells from the external environment and lurking inside, encoded in their genes. This is the world of the cancer ’risk factor’: of the Pap smear; the annual mammogram; the prostate-specific antigen test; the colonoscopy; the wait for the results of biopsies of polyps removed in the colonoscopy; the daily dose of Prilosec taken because frequent heartburn is thought to be a risk factor for esophageal cancer; even the world of knowing one’s personal genome and the world of the prophylactic mastectomy. … The risk-factor world holds out hope for avoiding cancer while recruiting masses of us into the anxious state of the ‘precancerous.’”

      He describes a woman who “has been getting annual mammograms since she was forty, and four years ago an abnormal mammogram was the occasion for an aspiration biopsy. This proved negative, but her anxiety increases. She surfs the Web for information about risk factors, and she is struck by direct advertisements for Tamoxifen to prevent the development of breast cancer, for which she now believes she is at serious risk. … A world in which cancer is normalized as a manageable chronic condition would be a wonderful thing, but a risk-factor world in which we all think of ourselves as precancerous would not. It might decrease the incidence of some forms of malignancy while hugely increasing the numbers of healthy people under medical treatment. It would be a strange victory in which the price to be paid for checking the spread of cancer through the body is its uncontrolled spread through the culture.”

      Dr. H Gilbert Welch covers this subject with great nuance and sensitivity in Should I Be Tested for Cancer. Dr. C K Meador wrote about the excesses of preventive behavior back in 1994 in an amusing NEJM essay called The Last Well Person. (http://bit.ly/978sS5)

  • Cátia

    I think we should review what is responsibility and education, and yes the individual is responsible for his choices.

    “There was a big uptick in the use of alternative “medicine” and stress reduction practices – acupuncture, chiropractic, herbalism, naturopathy, nutritional therapies, yoga, massage, biofeedback.”

    Can you explain how nutrition is alternative medicine? Nutrition intervention is based in scientific facts same as medicine. Don’t forget as well an healthy body uses food to be alive not drugs.

    • http://www.TheHealthCulture.com Jan Henderson

      Thanks for your comment, Catia. By “alternative” I mean an alternative to seeing an MD. There was a big increase in seeing alternative (non-medical) practitioners, such as nutritionists.

      Nutrition is, of course, extremely important to health. To some extent (where taste or texture is not an issue) it can be investigated in randomized, double-blind trials, which makes it a science. This is unlike some other alternatives where it’s impossible for the subject not to know he or she is receiving an alternative treatment. They do studies with “sham” acupuncture, but the subject still knows needles are being used.

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